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Our precious baby was
welcomed into this world at 1:12pm. A weak cry filled the air. The cord
was clamped & cut and our baby’s life was handed over to Laura Sheriff, the
admitting nurse. The baby was dried and a 1 minute apgar of 5 was given by
Dr. Lucena. Our baby was dusky and limp. The baby was intubated and given
surfactant with a noted improvement and a 5 minute apgar of 7. When asked
to verify the sex, we were told that the baby had ambiguous genitalia,
meaning it was unknown if the baby was a boy or girl by visual observation.
The baby was wrapped and placed in the transport isolette and taken briefly
by mom, then off to the Neonatal Intensive Care Unit. In the NICU, the baby
was placed on a ventilator called an oscillator. Lines called a UVC & UAC
were placed into the umbilical cord for IV fluids. Baseline labs were drawn
and antibiotics were started prophylacticlly for infection. A chest x-ray
was done and confirmed small lung volume. Afterwards, an abdominal
ultrasound was done. This showed an absent left kidney and a small right
kidney with cystic appearances. There was no visualization of a ureter or
bladder. At this time, the sex was confirmed a boy with a diagnosis of peno-scrotal
transposition meaning the scrotum and penis were flipped. His anus was also
noted to be in a posterior position. A head sonogram was also done which
showed a small choroid plexus cyst which is a fluid filled space in the
brain, which can be related to a chromosome disorder, or just disappear on
its own. Finally, an echocardiogram was done to view the baby’s heart.
This showed cardiac dextroposition meaning the heart was shifted to the
right side of the chest and a small-moderate PDA which is a blood vessel
that failed to close after birth. With all of these abnormalities, it was
not thought that he would survive dialysis. The option to terminate his
life at this point was suggested. After long intense consideration, we
chose to attempt the dialysis. We chose the name Landyn Paul Brodeur just
before he was transported to Children’s Medical Center of Dallas for
dialysis treatment.


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MOMMY’S THOUGHTS
You cried!! God
answered my prayers. I did not know what was going on over at the warmer.
It seemed so chaotic. When I heard ambiguous genitalia, I still thought you
were a girl! Dr. Jain and Dr. Lucena came over to update me. They
mentioned a penis and a scrotum and it wasn’t until this point I realized
you could be a boy after all of this time! They took you so quickly and I
barely got to see your face. It was the most beautiful face I had ever
seen. So perfect. It didn’t make sense that you could have any
abnormalities but it didn’t matter. In the recovery room, I couldn’t stop
thinking about you and the tests you were undergoing. Daddy finally called
and said….IT’S A BOY! I couldn’t have been more excited. It didn’t matter
to us, the love was there! When Dr. Lucena came back in, the news was not
good. He gave me a complete update. He suggested not continuing on with
life support. I couldn’t hear that. We had come so far. I wasn’t ready to
give up after another unknown. I just wanted to see you. They took me in
the stretcher, you were so beautiful! We created you! What a gift! You
were upset and trying to cry. It made me cry. I wanted you to rest, so I
went to my room. After we decided to transport you, the nurses somehow put
me in a wheelchair. I went to see you again. You were calm and resting so
peacefully. You look so much like daddy. We decided to name you Landyn
Paul. I will miss you while we are apart, but will pray for you every
moment. I love you so much!

DADDY’S THOUGHTS
You came out, and
it’s a … We don’t know!!! It looks like you are a boy, but things didn’t
form right and they are not for sure. They said they were going to x-ray
you and let us know. We got to hear you briefly cry. That was such a
relief!! We both felt that was a very encouraging sign of things to come. I
immediately left mommy to take pictures of you and watch them prep you for
your admission into the NICU. I watched nervously as they got you on the
ventilator and stabilized you. Everything seemed to be going just fine. We
later got the news that you would need to go to Children’s. We expected
this but were hoping we would not have to do this. They will be coming
shortly to take you. I get to ride with you to the hospital with mommy
staying behind. We hope everything is going to be ok. We got mommy in a
wheelchair to see you before you left. She was very upset that you would be
leaving but she had to stay for the next 3 days. It was for the better. We
wanted to give you every chance to live and we are going to do it! You are
going to see very good doctors. They will take good care of you. So far so
good the first night we believe. Everything seems stable and you don’t seem
to be in any distress. I love you!!!
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